I highly recommend this writer to any parent who is going
through a struggle, developmental or medical, with their child. http://www.jasonhague.com His son and his struggles are so
different than mine, but his perspective truly inspires me.
I always draw strength knowing how many of us are out there.
I still remember names from the rehab unit where Christopher lived for a few
months during his fifth year. Dan was so quiet and frail, but incredibly sweet.
Justin was amusing as his compulsions resulted in tripped fire alarms and other
fun surprises. Friendly Jessica or eloquent Cameron. They were in the same boat
as Christopher, fighting their way back to life after a traumatic brain injury.
Every child is different, unique. As we were told about Christopher’s brain
injury, we were also told “We won’t tell you what Christopher will or won’t be
able to do, because he will only make a liar our of us anyway.” The first weeks
were the worst. Christopher made no progress, and they sent us home with an
unconvinced-sounding rationale, “sometimes being home helps trigger something.”
We feared Christopher would be like little Kyle, who never truly regained full alertness, at least not that I ever knew about. But I learned what I have to
know and we headed for home, holding on to hope all the same. His Priesthood blessing
had said it would be slow, after all.
About ten years ago, after many rough years, and my own
decline into somebody I really don’t want to be, I concluded that I needed to
forget the previous twenty years and focus on building a future that was
better. Over the years, to overcome the pain, and the shame, I purposely
avoided thinking about anything that had occurred between my 18th
and my 38th year. After all, I was leaving behind a lot of rubbish
by doing so.
I am happy with the person I am becoming as I continue to
work and build my skills as a teacher, church member and family member. I can
do things I never believed that I could and I seem to be making a positive
difference in the world, one day, one effort and one student at a time. Even
though I was drawing on my life experiences, I worked on not thinking about
them too much. It was better that way. That is what I believed.
But then recently, my attention was drawn to a group of
young adults that are the same age as my own child. I was very impressed with
what they are doing with their lives, and excited for them. Of course, that
made me turn to my own sons life and journey, and why I was so surprised with
all these young people are accomplishing. You see, my son isn’t like that. He
doesn’t have a great job or career, he works at Life Skills. He doesn’t have a
family he cares for, he has caregivers who take care of him. And in spite of
this, he inspires people. It is amazing.
Recently I attended Rootstech 2017. It was hosted in Salt
Lake City by our church, The Church of Jesus Christ of Latter Day Saints. It is
all about family history. Research has shown that a powerful director in the
life of a person is a family narrative. They thrive on a sense of who they are
and how they fit into this world. Of course, there are really two narratives.
We have a family on earth. Every family is different, each one unique. Every
person born on this earth has a father and a mother. It’s science. Where each persons story goes after conception changes. There can be millions of families with two
children, even with one boy and one girl. But you will find differences in the
individuals of every family that meets that description. There is no story exactly
like another, no two family narratives are ever the same.
Anyway, so research shows that when individuals know where
they came from and who their family is, whether the story is triumph or
tragedy, they have a stronger sense of who they are. This can enable them to
try harder and achieve more than when they lack that narrative.
How does this relate to my opening about Christopher and my
forgotten past? Christopher is a runner. This means that as soon as he became
mobile after his brain injury, he began to try to run off to whatever adventure
he thinks may be awaiting him elsewhere. He could crawl so fast, before his
kindergarten teacher succeeded in getting him to walk, and he was a runner then.
Last Thanksgiving weekend, the Saturday after a day full of family and feasting
and fun, Christopher decided that things were too quiet in contrast. So he ran,
to go find that Thanksgiving party again. I received a call from an officer in
the West Jordan Police department. Christopher found them, after slipping past
his care givers, out the front door, down the long drive, and up 7800 S street
in West Jordan. Fortunately at 6:30 AM that rather busy street is quite
deserted, because Christopher does not have a good sense of safety in traffic.
He wandered another block to the police cars that were processing a drunk
driving accident. The center he lived in had equipped him with a little booklet
of phone numbers for family members and he had it with him. It was made so the
staff didn’t have to dig into his file when he wanted to talk to somebody, and
my number was labeled “Mom,” making me an obvious choice of who to call.
This incident resulted in another look at whether this care
center was the best placement for Christopher, as well as a series of meetings. At one
particular meeting, which took place on the day after New Years when most of
the nation was taking an extra day for the holidays, his father and I mentioned
his wanderlust. The director mentioned that I should write his story down. Unfortunately
I am not a writer. This is what I have told myself for decades as I have purposely
not written in a journal or diary. It is what I told myself when I struggled to
earn B’s on required writing courses in college. There were never any but REQUIRED
courses for me, since I have never sought out a writing course I didn’t have to
take.
I didn’t really think I wanted to write a book, and besides,
I have made a point of forgetting everything about the time span I would be
writing about. It is much less painful that way. Then I stumbled on the fact
that these remarkable young people I mentioned in paragraph five are about the
same age as Christopher. I guess having a son who never met the milestones that
his peers did changes how you perceive his age, because suddenly I was thinking
about these people, and the fact that this generation my son belongs to is out
shaping the world now. And I thought about what his story is and how it
differs. And then I thought about writing, like had been suggested to me a few
short weeks before.
Back to my mention of Rootstech. By the time I attended the
event, I had already decided to write and was beginning to put things down in
word documents. But I felt inspired as I sat and listened to the speakers that
I was meant to write Christopher’s story, a story he cannot write for himself.
But writing his story begins with writing my own. His includes digging into a
past I’d decided to forget, and remembering. I found things falling into place
when I found my old journal. I only wrote about ten entries in it, half of them were copies of
letters I wrote my brother on his mission, but it spanned some of those forgotten
years.
I discovered something in my memories. There is plenty of
pain, true. But there is also tons of good stuff; times we laughed, played,
worked and learned together. And as many times as I failed, I still did the job
of raising that boy, with help from friends and family. It was a creation of memories
I’d forgotten existed. It is a chance to
see who I am by recognizing and accepting who I was. In the same vein, it is a
chance to see who we all are who have been touched by Christopher’s life and
how it has made us better people.
On a final note, I don’t consider myself a particularly
great person. Great people don’t feel compulsions to bury and forget their
past. But by doing things I know are right, I can still inspire others with my
actions.
I recently came face
to face with a friend from my youth. I was at church with Christopher and we
were headed to the restroom. I had one hand gripping the back of Christopher’s
belt and the other tucked around his elbow as we walked down the hall. This way
if he trips or starts to fall, which he does very easily, I can break the fall
for him, something he doesn’t do well for himself.
This friend had been
Student Body President at our high school. I didn’t really run in the same
circles he did in High School, I wasn’t one of the ‘popular kids,’ but we’d lived
in the same neighborhood and we’d known each other since we were babies. He
marked his time as president by working to make every student in the entire
school feel included. He always took a minute to say hello and show interest in
me, even when he was impossibly busy, and I saw him do the same for everyone
else, too.
When I ran into him, we were at church and it was a week I
have Christopher with me. Then this man, who’d been so impressive in his own
accomplishments, expressed his respect and admiration for me, just because I
was Christopher’s mom taking him to church. I have to admit, in the past I hadn’t
ever thought Christopher needed to go to church since he understands so little
of it. But one day I realized that he would be in full possession of his
faculties on Judgment Day, and I didn’t want him to turn and asked me then and
there why I didn’t bother to help him learn about his Savior, Jesus Christ. I
knew I didn’t want that to happen, when it would be too late to fix, so I began
making sure he gets to church regularly. I wasn’t really doing anything beyond the
ordinary, I was simply trying to do something I know to be right. He seemed to
be impressed by this simple and ordinary act I perform for my son, and once
again I saw Christopher inspiring another in this life. Once again I knew that
the struggle is all worth it.
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